Voluntary and community group networks
LEADS: Dr. Mari Carmen Portillo (Spain)
This WP is the third thematic WP in the study and its main focus will be on describing and analysing the support mechanisms that operate on the meso level. This will complement WP2 and WP3 by focusing on the support provided by a diverse set of organizations: non-governmental, voluntary and community groups. The WP will develop new knowledge about the specificities of this domain in different national contexts and the function and scope of its role in relation to illness management and behaviour change of people with diabetes. An important aspect of developing such an understanding the WP will be aiming to describe and analyse the inter-organizational networks of such groups as well as to establish the affinities between personal and organizational networks. The findings of this WP will also feed into the development of interventions in WP7 where it will inform the mapping and understanding the functions of community resources within specific national contexts.
This WP will:
- Identify the types of health-relevant voluntary, community and local organisations available to people with diabetes in all partner countries.
- Describe and analyse their functions and reach.
- Establish how such organizations are associated with formal health provision.
- Ask what are the types of illness work that voluntary, community and local organisations are involved with,to what extent and under what circumstances are they involved; and do they act as substitutes or are they complementary to relationships with family, friends and health professionals.
- Identify the structure of inter-organizational networks of providers of health-related support and analyse their differences in partner countries.
- Inform the development of an intervention in WP7.
Description of work and role of partners
The main input will be offered by the University of Navarra under the leadership of Dr. Mari Carmen Portillo who will be responsible for writing a review (realist review) of the literature on non-governmental, voluntary and community groups that are offering illness related and well-being support for people with diabetes. The review will also aim to identify the specificities of inter-organizational networks within different countries and how such networks and individual organizations are linked to different forms of funding and delivery of services.
All partners will be responsible for developing country-specific reports that will be structured under the guidance of the lead partner and will be aiming to describe and analyse the specificities of their national contexts as well as to identify literatures relevant for their national contexts that may be unavailable and/or not translated into English. The review on non-governmental, voluntary and community groups (report outline) will then inform the empirical research from this theme that will be done within WP5 (interviews and focus groups with representatives and users of voluntary, community and local groups) and WP6 (survey of inter-organizational networks). The collected data will then be fully analysed and the findings will inform the writing of the final report of this, and will also inform the understanding the functions of community resources within WP7.